About Us

Meet Sebastian

Sebastian Nicolas Ortiz, the second of our three boys, was born on May 10, 2000. He unwittingly stole the spotlight from his mom Rose’s 29th birthday. Needless to say, she never received a better birthday gift before or since that day.

Board of Directors

Taylor Binder
Ramon Branger
Jose E. Cueto
Joe Fernandez
Jasmine Gomez
Frank Gonzalez
Leandro Gonzalez
Armando Lapido
James Mcallister
Rebecca Mendez
Oscar Ortiz
Rose Ortiz
Mike Percy
Vanessa Sanchez
Alexander Sueiro
Javi Vazquez
Kelsey Weaver

Past Directors

Luis de la Aguilera
Lindsey Chong
Danny Martinez
Emory Mayfield
Pamela Ricco
Joan Susie

Advisory Board


Meet the Doctors that help guide us towards the best possible projects to get us closer to a cure.  Our Medical Advisory Board (MAB) is comprised of some of the top doctors in the country who are working every day to make life better for kids.

Dr. David Loeb

Dr. David Loeb graduated from Johns Hopkins University and then moved to New York and obtained his MD and PhD from the Columbia University

Dr. Matteo Trucco

Dr. Matteo Trucco is the Director of the Children’s Cancer Innovative Therapy Program and a practicing Pediatric Oncologist at the Cleveland Clinic and

Dr. Warren Alperstein

Warren Alperstein, MD, is Assistant Professor of Hematology/Oncology/Bone Marrow Transplants at the University of Miami in Florida, as well as Assistant 

Dr. Ginna Priola

Dr. Ginna Priola completed her undergraduate training at the University of Virginia with a B.A. in Biology. She graduated from Eastern Virginia Medical

2020-10-13 headshots

Dr. Ranjith Muraleedharan

Dr. Ranjithmenon Muraleedharan is currently a research scientist at the Center for Development Therapeutics at the Broad Institute of MIT and Harvard.


This board is chaired & coordinated by Jim McAllister of Asheville, North Carolina, who also sits on the foundation’s Board of Directors.

Torch 35

Torch35 is SebastianStrong’s young professionals’ group, whose purpose is to support the mission and goals of the Foundation. They do so by hosting fundraising events, making personal contributions, developing volunteer programs, and leading community outreach initiatives.