About Us

Meet Sebastian

Sebastian Nicolas Ortiz, the second of our three boys, was born on May 10, 2000. He unwittingly stole the spotlight from his mom Rose’s 29th birthday. Needless to say, she never received a better birthday gift before or since that day.

Our Team

Oscar Ortiz

Sebastian’s Dad, Co-Founder & Executive Director

Rose Ortiz

Sebastian’s Mom & Co-Founder

Jasmine Gomez

Chief Operating Officer

Board of Directors

Board Member Taylor Binder link to LinkedIn profile.
Taylor Binder
Lisa Bonet
Ramon Branger
Jose Cueto
Frank Gonzalez
Board Member Leandro Gonzalez link to LinkedIn profile.
Leandro Gonzalez
Board Member Martha Guerra link to LinkedIn profile.
Martha Guerra
Aileen Mendez
Board Member Braulio Ortiz link to LinkedIn profile.
Braulio Ortiz
Board Member Mike Percy link to LinkedIn profile.
Mike Percy
Board Member Oscar Ortiz link to LinkedIn profile.
Oscar Ortiz
Board Member Alexander Sueiro link to LinkedIn profile.
Alexander Sueiro

Past Directors

Luis de la Aguilera
Lindsey Chong
Jose Fernandez
Matt Kuscher
Armando Lapido
Danny Martinez
Emory Mayfield
James McAllister
Rebecca Mendez
Yesenia Moreno
Rose Ortiz
Pamela Ricco
Vanessa Sanchez
Joan Susie
Javi Vazquez
Kelsey Weaver

Scientific
Advisory Board

 

Meet the Doctors that help guide us towards the best possible projects to get us closer to a cure.  Our Scientific Advisory Board (SAB) is comprised of some of the top doctors in the country who are working every day to make life better for kids.

Dr. David Loeb

Dr. David Loeb graduated from Johns Hopkins University and then moved to New York and obtained his MD and PhD from the Columbia University College Physicians and 

Dr. Matteo Trucco

Dr. Matteo Trucco is the Director of the Children’s Cancer Innovative Therapy Program and a practicing Pediatric Oncologist at the Cleveland Clinic and

Dr. Warren Alperstein

Warren Alperstein, MD, is Assistant Professor of Hematology / Oncology / Bone Marrow Transplants at the University of Miami in Florida, as well as Assistant

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Dr. Ranjith Muraleedharan

Dr. Ranjithmenon Muraleedharan is currently a research scientist at the Center for Development Therapeutics at the Broad Institute of MIT and Harvard.

Dr. Elizabeth Stewart

Dr. Elizabeth Stewart is a pediatric hematologist-oncologist and an Assistant Member at St. Jude Children’s Research Hospital in the Solid Tumor Division

Dr. Adriana Fonseca

Dr. Adriana Fonseca is a pediatric neuro-oncologist at Children’s National Hospital and an assistant professor at George Washington University School of Medicine. She leads the

Torch 35

Torch35 is SebastianStrong’s young professionals’ group, whose purpose is to support the mission and goals of the Foundation. They do so by hosting fundraising events, making personal contributions, developing volunteer programs, and leading community outreach initiatives. 

Financials

Form 990

Financial Reports